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A Rare Girl Battles A Rare Disease07:09

This article is more than 8 years old.

WBUR’s CommonHealth blog launched a new ongoing project today, following the story of a young Maine girl who suffers from a very rare disorder, and who’s hoping to begin a treatment regimen that shows promise.

Nine-year-old Riley Cerabona has a one-in-a-million disease that creates increasingly aggressive “lumps and bumps” on and in her body. The only treatment, so far, has been surgery. But right now, at Children’s Hospital Boston, Riley is trying an experimental drug that may—or may not—help her.



This segment aired on April 6, 2012.

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