WBURFinding The Humor In Gastrointestinal Distress

With his wife and son as his audience, Jonathan Mirin performs a dress rehearsal in his living room of "28 Feet," his new play about Crohn's disease. (Sacha Pfeiffer/WBUR)

Twenty-eight feet. That’s how much was left of Jonathan Mirin’s digestive tract after a surgeon removed a foot-long section of his intestines a decade ago. It’s also the name of his new, one-man play about his lifelong battle with Crohn’s disease. The show, “28 Feet,” which comes to the Boston Playwrights’ Theatre this weekend, is part comedy, part musical, and part therapy session for anyone with a chronic illness.


SHELBURNE FALLS, Mass. — I’m in Jonathan Mirin’s living room in western Massachusetts. Instead of just giving me a DVD of his latest play, he’s offered to put on a private performance right here for me and his five-month-old son. The show’s only about an hour long. So, really, how could I say no?

He begins to sing:

“I have something to tell you that’s not easy to say — something about these cramps that don’t seem to be going away…”

“28 Feet” is a solo performance, with Mirin singing and miming and acting the parts of about 20 different characters. In this scene, he’s a college freshman at what turns out to be a fateful doctor’s appointment.

“Hello, Dr. Holdinside, highly respected gastroenterologist,” says Mirin, playing himself. “My symptoms include diarrhea, nausea, fatigue and intense cramping.”

What comes next — acted out with puppets, thankfully — is a medical procedure that involves examining his colon with a flexible camera. The results are not good news.

“Jonathan, those red spots are what we call Crohn’s disease,” the doctor — also played by Mirin — reports. “Typically we start treatment with an anti-inflammatory called Sulfa.”

Mirin had never heard of Crohn’s when he was first diagnosed. It means your intestines are chronically inflamed. Doctors don’t know the cause or the cure. It sometimes results in malnutrition because the body can’t absorb nutrients in food. That’s why Mirin is so skinny — about 120 pounds.

Turning Disease Into Theatre

Mirin is 38-years-old now and runs the tiny Piti Theatre Company in Shelburne Falls with his wife, Godolieve Richard. When they were tossing around ideas for a new show, he thought of his Crohn’s and said, ‘Why not?’

“My case was — I think they described it as a ‘moderate’ case,” Mirin recalls. “I actually thought about that in the process of making this show, like, I am I going to make an hour-long big deal about my moderate case of Crohn’s disease? There are one-person shows out there about cancer, you know?”

But he thought he could make the play entertaining and informative and a larger coming-of-age story with real audience appeal. Not that he didn’t realize that marketing a performance about gastrointestinal distress could be a challenge.

“As soon as we finished the show and we were like, ‘Okay, now we have to write the press release,’ it was like — well,” says Mirin. “I remember thinking, can I write this to kind of minimize the Crohn’s part? Like, how do I emphasize the comedy and minimize the cramping?”

In this scene, he races through New York City trying to find a public restroom. That’s one of the major downsides of having Crohn’s: you never know when you’ll suddenly have a flare-up and need a bathroom really, really badly.

The play describes Mirin’s first decade after his diagnosis. He takes one drug after another: anti-inflammatories, immuno-suppressants, powerful steroids. None of them worked for long.

This song is about Mirin finding out that part of his intestines has to be surgically removed — or he may need a liquid diet for the rest of his life.

Bye, bye, valve
Bye, bye, intestine
Hello modern medicine
I think I’m gonna cry.

A New Approach To His Illness

By the end of the show, Mirin has changed his whole approach to his illness. He tries meditation and herbal remedies. He avoids eating wheat and sugar. And he says he hasn’t had to take any medication since his surgery in 1999.

“There’s this quote about journalism, I think,” Mirin says. “It goes, ‘Misery makes good copy.’ That’s why, as soon as I sort of make the turn towards getting better, the play ends shortly after that. Because who wants to watch 10 years of some guy getting better, you know? Nobody.”

But he hopes people will want to watch 10 years of some guy being sick and somehow finding the humor in his illness.

WBUR Topics · Arts & Culture · Boston · Health
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  • http://www.amazingthings.org Tyra Penn

    If you miss Jonathan’s performance this weekend, he will also be performing “28 Feet” at the Amazing Things Arts Center, 160 Hollis Street, Framingham, on May 16th at 3 p.m.

  • Beth Flanzbaum

    I am so glad that I this story. I have Crohn’s and can’t wait to see the performance…I’ll be there on the 16th.

  • Judy Hoffpauir

    I wish I lived close enough to attend, but Chattanooga is a bit far! I’ve lived with Crohn’s for 33 years. I was 19 and a soph in college when I finally got a correct diagnosis, 5 bowel resections later and am doing well.
    At first, I was embarrassed to talk about the symptoms, but over the years I have learned it’s much easier to discuss it in a “funny” way. I can see how this could be a very entertaining play. I wish you the best!

  • Dansk

    Having Crohns means that nobody can ever call me an anal retentive again. Dannan

  • http://www.MidLifeCelebration.com jeff noel

    Thanks for writing this and best wishes for a successful show Jonathan.
    Our son (9) has Crohns and a friend referred me to your article. Too bad we’re in Orlando.

  • Dana Revis

    I have had ulcerative colitis for 25 years, which is similar to Crohns. I would love it if people could buy a download of your performance. Then all of us who live all over the world could enjoy your gift in our illness.

  • http://www.ptco.org/solo.html Jonathan Mirin

    Thank you for your comments and support! Re: Dana’s question, just email me and I will let you know when we film the show. As we add tour dates, they can be found through the 28 FEET page (Springfield, MA on June 17!) Be well . . .

  • Robin Welch

    What a great approach to spreading the word that people with chronic illnesses such as Crohns and colitis can laugh too. Perhaps laughter is a form of medicine. Knowing that there are others who suffer with these challenging illnesses certainly helps too. I’m going to go to the show on May 16 in Framingham! Thanks for the great story!

  • Nancy Valentine

    Jonathan-it is so good to see your genius at work and telling the story of a difficult disorder from the patient’s perspective. This story and comic relief will help many others with their challenges. You have started a new form of “self-help” through your artistry. Part of health care reform is finding new ways to cope with chronic illness and you have addressed this with your play. Congratulations! I hope that this will be a “pebble in a pond” experience for you~where putting misery in context and offering hope to others will be shared around the globe.

  • Bev Browne

    Am looking forward to seeing the play and meeting you at the Majestic Theater in West Springfield. MA. (One of the benefits of being the primary scenic artist there) My son Brendan 28 was diagnosed with Crohns Disease at age 12. 2 of my family members have spouses with the disease.
    Here’s to finding a cure
    Thanks and stay healthy

  • Theresa

    Although I try to keep a positive attitude and enjoy life when my crohns is in remission I also want the entire medical community to know how devastating this disease is to us emotionally as well. Battling crohns is no laughing matter no matter how positive you stay or joke about it. : (

  • Karen Guglielmo

    YES! Bringing insights of our challenges in dealing with Crohn’s disease and chronic illness, while making it entertaining for the masses is a great untapped approach! After 10 surgeries, I’m ready to make my own, one-woman show, “3 Feet” or should it be titled, “The Longest Yard”? Drat…already taken!

  • Garry Kennedy

    diagnosed in 1976 Crohn’s diease. considered a rare disease. Have had 4 surgerys 2 of them related with Colon Cancer. I say go for it. humor is good medicine.I will be routing for you.

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