Resource List: Lyme Disease
Click on the links below for more comprehensive information about Lyme disease.
– From the CDC: Patient information, general Lyme disease topics and FAQs
– From the Legislature: Lyme disease in Massachusetts: a public health crisis
A Sampling Of Local Sites:
Alternative/Advocate/Patient Support Groups:
– International Lyme and Associated Diseases Society (created as an alternative to the mainstream Infectious Diseases Society of America)
– Sturbridge Lyme Awareness of Massachusetts (S.L.A.M) (LymeNet lists other Massachusetts support groups here.)
CommonHealth co-host Carey Goldberg has been reading widely on Lyme disease. Some of her favorites:
- It came out almost 10 years ago, but Beth Israel Deaconess Medical Center’s Dr. Jonathan Edlow spins a fascinating scientific yarn in “Bull’s-Eye: Unraveling the Medical Mystery of Lyme Disease.”
- Pamela Weintraub is a leading science journalist, executive editor of Discover magazine, and her whole family has been through a nightmarish Lyme disease journey. Her 2008 book, “Cure Unknown: Inside the Lyme Epidemic,” is billed as “the most comprehensive account of the past, present and future of Lyme disease,” and it weaves in harrowing personal medical accounts as well.
- “The Widening Circle: A Lyme Disease Pioneer Tells Her Story” is an oldie but goodie: A first-person narrative by Polly Murray, the artist and mother of four in Lyme, Conn., whose activism was critical in getting the disease on the map. It’s also just mind-boggling what she and her family went through.
Tick 101: From the American Lyme Disease Foundation:
Readers, what are your suggestions?