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'Someone Was Actually There For Me': Advocate Helps Thousands Suffering From ALS11:07Download

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Ron Hoffman speaking with Susan Krohn about how things are going during a home visit as her husband Paul Schaffrat looks on. (Jesse Costa/WBUR)MoreCloseclosemore
Ron Hoffman speaking with Susan Krohn about how things are going during a home visit as her husband Paul Schaffrat looks on. (Jesse Costa/WBUR)

Amyotrophic lateral sclerosis, also known as Lou Gehrig's disease, is a debilitating syndrome that leaves sufferers without the use of their limbs, and sometimes even unable to talk.

Here & Now's Lisa Mullins meets one man who's made it his life's mission to help those diagnosed with ALS.

This segment aired on October 12, 2017.

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