By Dr. Annie Brewster and Jonathan Adler
As a patient you've no doubt had moments when you feel like your doctor just doesn't get you, or, that you don't get your doctor.
If you've never felt rushed, ignored, overlooked or vulnerable during the course of your medical care, you've probably never been a patient in the U.S. health care system.
And if you're a doctor, or another type of health care provider, you've probably felt hassled, frustrated, and powerless to help your patient, despite your best intentions.
In today’s medical system, the patient-doctor relationship is often challenged, in large part because there’s no room for us to actually engage with each other as people, to hear each other’s stories.
In medicine, there are unspoken but clear rules about what is appropriate behavior within the context of the patient-doctor relationship: doctors should never reveal intimate details about their own lives, and patients should never ask. Patients, meanwhile, should stick to the facts of whatever is ailing them, giving their provider the data for diagnosis and treatment planning, without superfluous anecdotal detail.
Professional boundaries are certainly important. There is validity to the argument that doctors need to keep distance in order to make clear medical decisions, striving to minimize the biasing impact of emotion. And perhaps it is also true that patients benefit from some distance, in thinking of their doctor as an authority figure rather than a friend. But this obsession with boundaries has conspired with the pressures of efficiency and economy that constrain the health care system to remove some very personal (and important) elements of the patient-provider relationship.
We are far from the small town medicine of the past, when patients and doctors knew the details of each other’s lives because their worlds intersected outside of the exam room.
Nowadays, in the 15-20 minute appointments that we are alloted, the patient-provider relationship can feel sterile and robotic. At its worst, it can feel antagonistic. Doctors are over-loaded and time constrained, with fear of litigation and the rules of HIPAA pressing in on them, and a payment model that rewards quantity over quality.
Patients often feel hurried and neglected; overwhelmed by the task of presenting the frightening aspects of their health in the right way to get answers and treatment. Physician burnout is ubiquitous, as is patient dissatisfaction.
It is our belief that by highlighting the humanity of both individuals in the relationship, the patient-doctor bond can be strengthened, with increased satisfaction all around.
Taking it one step further, we believe that reviving the humanity in this relationship will ultimately lead to better health outcomes.
So, here at Health Story Collaborative we've designed a program in which a patient and a doctor come together to share and listen to one another’s personal narratives. This new patient-provider model is a variation of our already existing Healing Story Sessions program. In short, our goal is to create a space where both patient and provider can be human.
We recently launched this project in collaboration with the Cambridge Health Alliance, with a grant from the Arnold P. Gold Foundation. We met on a Tuesday evening recently with Tracey Pratt, a woman with diabetes and her health care provider of many years, Dr. David Baron. As they shared their stories, an audience, including other diabetes patients, Dr. Baron's wife and other medical providers, listened on.
We worked with both speakers in advance to craft their narratives, encouraging personal refection as well as their thoughts about the their mutual relationship.
Tracey talked about her passion for teaching, her travel to the Great Wall of China, and about learning Merengue in Havana, Cuba. She also detailed some of the difficulties she had managing her diabetes.
David told stories about growing up in rural Ohio, picking corn in the fields as a teenager, about his time in the Peace Corps in the Dominican Republic, and his journey to becoming a doctor.
He also shared his wish to rescue people, something that being a doctor both satisfies and challenges.
Both discussed their experiences working together to manage Tracey’s diabetes, and the inevitable challenges along the way.
Hearing these varied perspectives opened each participant up to the other’s history, weaving their relationship into a broader pair of ongoing narratives. It also brought the other members of the group and the treatment team toward a better understanding of these two people who participate in their experience of struggling with diabetes.
As one patient in the audience put it, “hearing about my doctor’s life and meeting his wife was a privilege.”
When asked about what listening to the stories taught them, audience member comments included “Everyone is human. It is humbling” and “Both the patient and the doctor have complex and real lives behind their official presentation.”
As for Tracey and David, both found the experience to be quite meaningful and said that it will change their relationship in positive ways going forward.
How these changes continue to play out remains to be seen. But we feel this Patient-Provider Healing Story Session demonstrated the power of carving out space for a genuine, human connection between people struggling with illness and their doctors.
Our hope is that running more sessions like this one will continue to impact the participants as well as introduce a different model of care in the broader health system.
Dr. Annie Brewster, M.D.is Founder and Executive Director of Health Story Collaborative. Jonathan Adler, Ph.D., is Chief Scientific Officer and Co-Director of the Healing Story Sessions program at Health Story Collaborative