Other racial groups

While data for smaller minority populations is harder to come by, where it exists, it also shows glaring disparities. In New Mexico, Native American communities have accounted for 60% of cases but only 9% of the population. Similarly, in Arizona, at least 136 Native American have died from COVID-19, a striking 21% of deaths in a state where just 4% of the population are Native American.

In several states Asian Americans have seen a disproportionate share of cases. In South Dakota, for example, they account for only 2% of the population but 12% of cases. But beyond these places, data can be spotty. In Iowa, Maine, Michigan, Oklahoma and Wisconsin, Asian Americans and Hawaiian and Pacific Islanders are counted together, making comparison to census data difficult.

Fernandez points out that if COVID-19 demographic reporting included language, public health officials might see differences among different Asian groups, such as Vietnamese or Filipino Americans. "That's what's going to allow public health officials to really target different communities," she says. "We need that kind of information."

Understanding the unknowns

Months into the pandemic, painting a national picture of how minorities are being affected remains a fraught proposition, because in many states, large gaps remain in the data.

For instance, in New York state — until recently the epicenter of the the U.S outbreak — race and ethnicity data are available for deaths but not for cases. In Texas, which has a large minority population and a sizable outbreak, less than 25% of cases and deaths have race or ethnicity data associated with them.

There are also still concerns about how some states are collecting data, says Christopher Petrella, director of engagement for the Antiracist Research and Policy Center at American University. For example, he says West Virginia — which claims to have race data for 100% of positive cases and 82% of deaths — only reports three categories: white, black and "other."

Also, some states appear to be listing Hispanics under the white category, says Samantha Artiga, director of the Disparities Policy Project at Kaiser Family Foundation.

"There's a lot of variation across states in terms of how they report the data that makes comparing the data across states hard, as well as getting a full national picture," Artiga says.

But experts fear that the available data actually undercounts the disparity observed in communities of color.

"I think we have the undercount anyway, because we know that minority communities are less likely to be tested for COVID-19," says Millett. NPR's own analysis found that in four out of six cities in Texas, testing sites were disproportionately located in whiter communities. Millet points to a recent study, released pre-peer review, that found that when testing levels went up in disadvantaged neighborhoods in Philadelphia, Chicago and New York City, so too did the evidence of the disproportionate impact of COVID-19 on these communities.

Lawmakers have raised concern about the way the Centers for Disease Control and Prevention reports racial and ethnic data; the agency didn't report on demographics early on in the crisis, and even now it updates it weekly but with a one- to two-week lag. Democratic senators Patty Murray of Washington and Democratic Rep. Frank Pallone, Jr., of New Jersey called a recent report on demographics the CDC submitted to Congress "woefully inadequate."

"The U.S. response to COVID-19 has been plagued by insufficient data on the impact of the virus, as well as the federal government's response to it," Murray and Pallone wrote in a letter sent May 22 to Health and Human Services Secretary Alex Azar. They called on the Trump administration to provide more comprehensive demographic data.

A tailored public health response

Essien says he's heard concerns from colleagues that by focusing on race and ethnicity in the disease, "some of the empathy for managing and treating is going to go away."

"If people feel like, 'Well, this is a them problem and not a me problem ... then that may potentially affect the way that people think about the opening up of the country," he says.

But unless testing and other resources are directed now to communities that need them most, the pandemic will go on for everyone, says Nunez-Smith.

"This is important for everyone's health and safety," she says.

Nunez-Smith says race and ethnicity data is necessary for officials to craft tailored public health responses.

"For many people, physical distancing is a privilege," she says. "If you live in a crowded neighborhood or you share a household with many other people, we need to give messaging specific to those conditions. If you need to leave home for work every day, if you need to take public transportation to get to an essential frontline job, how can you keep safe?"

A tailored public health response is already happening in Louisiana, where LaVeist says his task force has recently recruited celebrities like Big Freedia, a pioneer of the New Orleans hip-hop subgenre called bounce, to counter misinformation and spread public health messages about COVID-19 to the African-American community.

Given the pandemic's disparate toll on communities of color, in particular low-income ones, Fernandez and Nunez-Smith say the public health response should include helping to meet basic needs like providing food, wage supports and even temporary housing for people who get sick or exposed to the virus.

"We have to guarantee that if we recommend to someone that they should be in quarantine or they should be in isolation, that they can do so safely and effectively," Nunez-Smith says.

Nunez-Smith says if you don't direct resources now to minority communities that need them most, there's a danger they might be less likely to trust and buy into public health messaging needed to stem the pandemic. Already, polls show widespread distrust of President Trump among African-Americans, and that a majority of them believe the Trump administration's push to reopen states came only after it became clear that people of color were bearing the brunt of the pandemic.

Fernandez notes that among Latinos, distrust could also hamper efforts to conduct effective contact tracing, because people who are undocumented or in mixed-status families may be reluctant to disclose who they've been in contact with.

"This is a terrible time for all of us who do health equity work," says Fernandez, "partly because this is so predictable and partly because we're standing here waving our arms saying, 'Wait, wait. We need help.' "

Connie Hanzhang Jin, Alice Goldfarb and Selena Simmons-Duffin contributed to this report.

Copyright NPR 2021.