There's been a major change in the way the medical establishment views a devastating disease, commonly known as Chronic Fatigue Syndrome. It affects more than 1 million Americans and it's been a somewhat controversial area of medicine, down to the name.
The World Health Organization now uses Myalgic Encephalomyelitis, which refers to pain and inflammation in the brain and central nervous system. Some patients argue, the trouble with a name that has "fatigue" in it is that it makes people think this is just some syndrome that involves being tired, and that doesn't nearly capture the overwhelming nature of the disease.
- "Last week, the National Institutes of Health announced a welcome change: They promised to help the more than 1 million Americans who have the devastating disease commonly known as chronic fatigue syndrome."
- "Three years ago, a sudden fever struck me on a blue-sky Wisconsin morning. I've been sick ever since. On my third “illiversary,” I presented an opportunity to Francis Collins, the head of the NIH."
This segment aired on November 2, 2015.